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Why Food Allergies Are Like A Game Of Pac-Man

4/27/2015

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I think it can be really hard to explain what food allergies are like to people who don't live with them daily. It can be especially hard to explain the emotional toll that they take on us. Sure, food allergies only show real symptoms when we have a reaction (which for some of us is more often than others) but they effect us constantly. For those of you with out there who don't have food allergies, here is my best shot at trying to explain what living with food allergies is like. But before I do so, I want you to play a game of pac-man below. Bear with me, I promise it has a purpose.

Pac Man Classic Arcade Flash Game
Imagine life with food allergies is like the game of pac-man you just played. In pac-man there are 5 fundamental rules. 
  1. Pac-man keeps moving
  2. The main goal in pac-man is to "eat" the yellow dots to gain points
  3. You want to avoid the colored ghosts
  4. You want to eat the big dots because they make the ghosts safe
  5. Cherries are your lives, the more you have the better 

Now you are probably pretty lost to how a simple arcade game relates to the lives of people with food allergies. Let me explain. Just like pac-man keeps moving, our lives keep moving. Just like in pac-man, where the game revolves around food, our lives revolve around food. Most social events, family dinners and holidays all involve food which can sometimes make us feel left out or unsafe. The colored ghosts are like food allergens. If pac-man "eats" the ghosts or the ghost touches him, he will die just like if we eat or touch a food allergen we could potentially die. The ghosts move everywhere and Pac-man has no control of which way they will go. Like the ghosts, we have little control over our exposure to our allergens. The big dots are like our friends and family who help keep us safe. Just like in pac-man where they remove the threat of ghosts, our friends and family can help remove the threat of allergens and make it safe for us to eat and take advantage of life. The cherries in the game are like epinephrine; they are truly lifesavers and without it, if we are exposed to an allergen, we could die. 

Now I want you to play the game again. This time I want you to pretend like you have bet a million dollars on winning the game. In order to win you have to get all of the little yellow dots. Go for it, play the one million dollar game!

Pac Man Classic Arcade Flash Game
That was really stressful right? You were probably a little (or a lot) more focused and cautious this game. Maybe you tired harder to find the big yellow dots that would help keep you safe and tried harder to run away from the ghosts. Did you enjoy the nice break you got when the ghosts turned blue? You probably were a lot more methodical and maybe tried to plan how you would attack the game before you started. That is how we food allergic individuals approach life. We look for those who will keep us safe and we work really hard to avoid what we are allergic to. We often try to plan out our days in advanced to make sure we will be safe; being spontaneous can be really difficult and dangerous for us. We always make sure we have our medication just incase something happens because we know how serious food allergies can be. What makes us smile and helps us enjoy life is when our friends help protect us and keep us safe so that we can relax and take a short break. If you are a big yellow dot in the life of someone with food allergies I hope you realize now the true amount of impact you have on their life. Thanks for being an ally!
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An allergic reaction to Allergy Medication

4/7/2015

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I have a lot of food allergies and I have learned how to be extremely careful when it comes to what I put in my mouth. Because of my extensive allergy list, I don't eat anything my parents, my grandma or I don't prepare myself; that means no restaurants, no dining halls and no prepared foods sections at the grocery store. 

Food allergies also pose an issue as far as medications go too. Many medications contain lactose monohydrate. While lactose is a milk sugar, it still has bits of whey and casein attached to it. I have always asked for my prescriptions to be milk free and it has never been a problem. No one had ever messed up with my medications until a few days ago.

I went to the pharmacy to refill my prescription for singulair, like I do every month. This time I got a brown square pill instead of a white round pill. I didn't really question it since they always check my medications and know about my allergies.
My Usual Pill
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The Pill I Was Given
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Unfortunately, the brown square pill contained enough proteins attached to the lactose to give me an anaphylactic reaction and a bad asthma attack. After about 5 minutes of taking the pill, I could tell something was wrong. I had used my auvi-q after breaking out in a rash and had used my inhaler.  Because it was 11:00pm by the time I took the pill and used the auvi-q and was alone, I texted my Student EMS group who I knew were still up since we had just gotten out of a meeting. Plus, they are EMTS and I have full trust in them. Because I am an EMT too, I often a little too stoic and take a while to admit defeat and give into going to the hospital. I was lucky enough to have two friends come over to meet me and check on how I was doing. After continuing to struggle to breathe and my increased use of accessory muscles which was pointed out by one of my friends who was with me, we went to the ER. 

Like I said, I tend to be pretty stoic when it comes to being sick. Despite my labored breathing, I didn't want to bother Pittsburgh EMS so with the help of my friends, I walked (and piggy back rode) the five block journey to the hospital. When we arrived at the hospital I was promptly taken back to a room and treated. 

We didn't get out until 3:45am. This time, the walk back to my apartment seemed a lot shorter. My one friend stayed the night (which was very nice of her) and we woke up at 7:00am for a previously scheduled doctors appointment. So neither of us got much sleep 

The main goal of writing this post is to help insure that something like this never happens to anyone else. I am so lucky to have the support of friends who love and care about me and my well being and are willing to spend the night (well I guess morning) with me in the ER. The truth is though, this reaction was completely preventable. Luckily the ER doctor gave me a good way to check ingredients in medications so I can prevent it in the future and help others prevent it too.

If you go to http://www.drugs.com/imprints.php you will go to a window that says pill identifier. You can put in the letters and numbers on your prescription, the shape and color like I have done below. 
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Once you press search, you should get a summary of the medication like the below, along with a list of inactive ingredients.
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Please share this with your friends and family with food allergies so we can prevent incidents like this in the future! Also, special thanks to my friends Nick and Lekha for helping me out! You guys are the best! 
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Passover...College Friendly and Food allergy Friendly 

4/4/2015

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If I had to rank my favorite holidays, Passover would definitely be in the top 3. I'm not really sure why I like Passover, other than it has always been a time filled with family and friends. This year, I was unable to go home for Passover so I decided to have my own seder. I knew it would have to be small since I can only sign three people into my building at a time and obviously it would have to be allergen friendly. I am so honored I got to share my traditions with my non-Jewish friends!
Here was the menu:
Seder Plate:
  • Maror- horseradish
  • Charoset- a nut free charoset made with apples, grape juice, cinnamon and raisins
  • Karpas- Celery
  • Z'roa- Canned beets (instead of the shankbone)
  • Beitzah- sunflower seeds (instead of the egg)
  • Chickpea matzo made with chickpea flour, water and salt 
Main meal:
  • Steamed broccoli 
  • Matzo ball soup made with chickpea flour matzo balls and flaxseed instead of egg
  • Vegetarian "Brisket" 



Dessert:
  • Birthday cake (not kosher for passover)
Drinks:
  • Water
  • Grape Juice
  • Sparkling Orange Lemonade
Wishing everyone a safe holiday season!
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A Letter To The Man Who Made My College Apartment Feel Like Home

4/2/2015

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I am almost about done my freshman year at the University of Pittsburgh. I love Pitt; I have met so many amazing people over my first two semesters and I have made friends I know I will have for a lifetime. One of those friends is someone who I would have never expected; his name is Lenny and he is one of the facilities management staff in Ruskin Hall—the on campus apartment I live in.  He is one of the sweetest people I have ever met. As the end of the semester draws to an end and summer seems just around the corner, I wanted to take a moment to write this letter to him because he has truly gone out of the way to make me home away from home a REAL home! 
 
Dear Lenny,
As I write this, I have 24 days of school left until the end of my freshman year here at the University of Pittsburgh. We first met 227 days ago when I moved into Ruskin Hall. I was terrified to be honest. I was a freshman moving into an all upperclassman dorm. You would soon come to learn that I have too many anaphylactic food allergies to eat in the dining hall, so the Disability Office at Pitt had given me a single apartment in Ruskin so I could cook all my own food. My access to a kitchen and safe food was an obvious plus but I knew living in a single apartment with all upperclassmen meant I was not going to have an RA, other kids living on my floor with a similar experience, or a roommate to become best friends with. But, I soon found out though I had someone no other freshman at Pitt had—and that was you.
 
I will forever remember you Lenny. I will remember the smile you give me before I leave for class each day, I will remember the bear hugs you give, I will always remember to tell you what I am cooking and I will always remember how you go out of the way to make my feel at home. 
 
I know that you said that you are not looking forward to the summer when we all leave and Ruskin is empty. I want you to know that I will be looking forward to the end of August when I get to return to apartment 211, I will look forward to your morning hugs, and I will look forward to another year in my home. When I come back though, I will no longer be the same nervous freshman you met 227 days ago. I will not be worried about feeling alone or isolated because I know that no mater what, you will be waiting at the bottom of the steps with open arms to give me a hug before I head to class.
 
Luckily, I will also have a lot of friends who will be joining me in Ruskin Hall next semester and I have already told them all about you!
 
Thanks for everything you do Lenny! 
 
Your friend,

Lily

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    Author

    Lily Roth Is a college student with food allergies and Nancy Popkin is her mother.

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