Food Allergy Survival Guide- High School and College Survival Guide
  • Home
  • The Guides
    • High School Guide
    • College Guide
    • Guidance Counselor Guide
  • Safe Cooking
    • Dorm Friendly Recipes
    • Top 8 Allergen Substitutions
    • FASG Cooking School
  • Resources
  • Our Blog
  • About Us
    • The Authors
    • Contact Us
    • Press
  • Guest Mentors
    • Meet the Guest Mentors
    • Apply to be a Guest Mentor
    • Guest Mentor Blog

Food Allergies SUCK!

10/5/2015

77 Comments

 
I love silver linings, but sometimes it is important to admit that no matter how many silver linings you can find, things can still suck! For a long time, I have worked hard to be optimistic about food allergies. I try and remind myself that they force me to eat healthy, that they have given me empathy for my patients on the ambulance, that they allow me to have my own apartment, that things could be worse, etc. (I don't want to go on and on.) 

Last night, I had my fifth anaphylactic reaction and my third ER trip since January of this year (note: don't be like me, go to the ER every time you use epinephrine). The truth is, anaphylaxis sucks for everyone involved. It sucks for me because it makes me feel like complete crap. It sucks for my friends/family because it makes them worry and scares them. And, it sucks for the health care staff involved because it gives them more work. Long story short, anaphylaxis isn't fun for anyone.

Every time I have an anaphylactic reaction, I end up feeling sick for days; I get hives that come and go, my asthma flares, I loose my appetite and I feel like I want to crawl into my bed and never come out. My reactions mess with my school work and my social life and honestly I am tired of being allergic to things. But most of all, I am tired of anaphylactic reactions. 

According to my Mom's yoga teacher, we all do this thing called spiritual bypass. We tell ourselves things like "it could be worse" or "it makes me stronger" as a way to cope. We bypass "it sucks" or "this could kill me" as an attempt to save our own emotions. When don't admit how much things suck, we end up stuffing our emotions because saying "this makes me stronger" doesn't get rid of the negative emotions surrounding weakness and vulnerability that we also feel. Stuffing emotions is unhealthy and eventually can lead to manifestations in our emotional and physical well being. Personally, I am spiritual bypasser.  

After anaphylactic reactions, or days when food allergies seem interfere with my life, I usually try and mentally list the benefits of food allergies in an attempt to force myself to forget how much food allergies suck. Today though is different. I am tired of stuffing my emotions and I am tired of pretending that having food allergies is a walk in the park. Today I am admitting, publicly that food allergies SUCK. I would not wish them on my worst enemy. In writing this, I am NOT asking for sympathy and I am NOT writing this because I am an entitled brat who's life isn't going her way. I am writing this because it is time I am honest with myself and you all as my readers. Today, there will be no sugar coating. Here is why, food allergies SUCK:
  1. They make my grocery bill 5x more expensive than it needs to be.
  2. They take away my freedom to eat out at restaurants and other people's houses. 
  3. They took away my chance to have a normal freshman year in a college dorm.
  4. They make dating and kissing tricky and potentially dangerous. 
  5. They make handshakes super awkward and potentially dangerous.
  6. They make going on family vacations hard and super stressful on my parents.
  7. They make holding down a typical starter job like a waitress or food store clerk near impossible.
  8. I can't just go to a party and drink from the vat of mystery punch. In fact, they make it so I can't drink at all.
  9. They turn me from provider to patient--which I hate. 
  10. I have to carry around my epipens where ever I go--even if they don't conveniently fit anywhere.
  11. Any place more than 25 minutes away from the hospital is off limits for travel.
  12. I have to get allergy shots...weekly.
  13. I feel like they make me a burden on my friends.
  14. They make it so I have to go to three different grocery stores just so I can get all the food I need.
  15. The medications they give me to combat anaphylaxis make me feel almost as crappy as the anaphylaxis itself...namely IV benadryl and epinephrine. 
  16. They make it so any bite could be my last.
  17. They make me worry that one day my family will get the call that something happened to me.
  18. Because of my multiple life threatening food allergies, multiple people have told me that when I am ready to go, all I should do is go out to eat and order whatever I want and not give myself my epipens once I start reacting. (Let it be known that food allergies are NOT going to be what puts me 6 feet under)
  19. Because of them, I am currently in mile high debt to everyone who has ever helped/saved me during an anaphylactic reactions.
  20. The have caused my parents, friends and teachers to have to stab me. 

It is important to unstuff our emotional baggage from time to time. Honestly, that felt amazing and I hope that you will take a chance to unstuff your emotional baggage as well. Why do you or your child/friend/relative's food allergies suck? Come on, I know you want to get it off your chest! 
Picture
77 Comments
Valerie Cordero
10/5/2015 04:46:05 pm

And you still are the most optimistic, encouraging, faithful best friend willing to help anyone anytime! You are seriously a role model Lily. Love you! (Even if I don't smile when you try to force me to and look annoyed lol )

Reply
Gina Clowes link
10/5/2015 05:44:19 pm

Oh my God sweet Lily, I am so sorry.
You are so kind and brave and such a sweet soul.
Food allergies absolutely do suck.
Hang in there!
I will email you too! <3

Reply
Heather
10/5/2015 05:57:21 pm

You know what? You're so right - food allergies suck! For all the reasons you've listed and probably even more! Hang in there - sounds like hollow words, but you have to keep on keeping on :) My son with food allergies is 5 years old and I look to all of those proceeding ahead of him for hope that it can be done, for hope that he'll spread his wings and fly one day!

Reply
Diane
10/5/2015 07:23:38 pm

I love that..."Keep on keeping on" I'm using that. Thank you:).

Reply
katie moran
10/5/2015 05:58:57 pm

I'm glad you put this out there. Sometimes you have to vent, you have to scream, you have to fight. Keep your head up. I hope my peanut allergic munchkin grows up to be as intelligent and well written as you are.

Reply
Marie
10/5/2015 05:59:03 pm

Hang in there. There are promising things in the horizon. Eat clean even if it means preparing your own food. Look into FAHF-2, OIT, or SLIT while you are still on your parents insurance.

Reply
Marcia Sampson
10/5/2015 05:59:28 pm

I too suffer from food allergies they do suck, fortunately I have not ended up in er from anaphylaxis reactions from foods, its been from medicine reactions. You are so brave, and I so understand the ridiculous grocery bill as I hate shopping and trying to figure out what to buy. Keep your head up! ! Keep on rolling someday it will get easier I hope.

Reply
Lisa
10/5/2015 05:59:40 pm

Yes, food allergies are stressful, scary and prohibit a 'normal' life. But, they also teach you courage and empathy and allow you to quickly realize who your truest friends are. Have your breakdowns, they are deserved and needed. But, then put your 'game face' back on and keep going--you can do great things in life with courage and empathy!!

Reply
Amy Weller
10/5/2015 06:02:21 pm

My heart goes out to you! I can't agree more food allergies suck but they also make us stronger! Hugs!

Reply
Mary Ellen Garde link
10/5/2015 06:02:51 pm

This was an amazing post... thank you for sharing your story and especially the spiritual bypass, so true- we all have places in our lives where we do this. Personally, I was raised by (well meaning) parents who often would remind me how lucky I was (even when things were pretty crappy). As an adult (and a coach) I have to work hard to fight the urge to always look on the bright side. blessings to you xoxo

Reply
Amy
10/5/2015 06:03:56 pm

Be strong...you never know who you are inspiring! (I have a 10 and 13 year old who have sever food allergies to dairy and peanut...my 10 year old was in the ER this weekend after having an anaphylactic reaction)

Reply
Kate
10/5/2015 06:06:24 pm

Yes! Food allergies do suck! I developed mine in college and have since aquired several more and now have a daughter with a severe peanut allergy. It sucks! It's not fair! But I'm so thankful for thoughtful family and friends that go out of their way to accommodate us. If nothing else, it's taught me to be confident and be an advocate for myself and my daughter. I feel stronger for it.

Reply
RJ
10/5/2015 06:07:11 pm

Thank you for sharing your side.. as a mother of a food allergic child I often wonder how he feels about his allergies.. he is too young to articulate his feelings but reading about your feelings, your maturity about your situation and your positive outlook was comforting. I wish you all the best...

Reply
Erin
10/5/2015 06:07:11 pm

As a food allergy mom, you are not a burden on your parents! I'm sure your friends don't feel that you are, either <3. Just take good care of you & the people who love you will happily do what it takes to help. Good for you for expressing your frustrations. Tell your story, be yourself, you're helping to educate people.

Reply
Ali
10/5/2015 06:07:48 pm

Hi Lily, I remember your amazing speech at the FARE Teen Summit last year. You were easily the best speaker at the entire conference - I was one of the moms laughing and listening during your speech. You have an incredible talent for communication, evidenced even more by this post. I'm grateful that you shared these thoughts because there are times when all the "it could be worse" and "it makes me stronger" thoughts just don't cut it. Keep communicating, I'm glad to listen to and read it all.

Reply
Jeannine
10/5/2015 06:08:41 pm

Lily, you are a gifted writer. Thanks for sharing your thoughts and frustrations. You are in good company! I am a parent of a food allergic 12 year old son.. I do have a huge food bill.. I do stress over vacations.. I do sound like a crazy person when I try to explain the allergies in a restaurant.. I am petrified of my son's first kiss.. And every kiss after.. I wish you all the best, and a healthy long life! Hugs!

Reply
Tammy
10/5/2015 06:14:05 pm

Can't imagine living the way you do but you are amazing to have made it so far. Hang in there.

Reply
Sally
10/5/2015 06:19:59 pm

Lily,
As the mother of a child with a life-threatening allergy, I want to thank you for helping me and others like me. I can't imagine you want to hear that but KNOW even in hard times you are helping so many others.
It sucks to worry every time he leave without us. He is 12 and doesn't want to be with us but I have a hard time letting go. Hearing your thoughts will help both of us to make better choices.
I am so sorry for what you're going through but know you have support and admiration.

Reply
Beth
10/5/2015 06:25:25 pm

Hey Lily, my 15 yr old is Lily also and ashe is ana to dairy, we feel you sister. Recently I was in the grocery store and fil.ed myself shopping, repeating this ducks it ducks it sucks! While trying to buy food for my girl. It's kind of funny in a demented way. Im not sure how I can send it to you but I'll try maybe on the allergy moms page. Get better so you can get at it! Hugs.

Reply
Janine
10/5/2015 06:30:45 pm

You said it! Congrats on your usual positive outlook. But no denying it, food allergies suck!

Reply
Isabel
10/5/2015 06:31:04 pm

it sucks big time. My daughter is only 8, and we only discovered her cashew allergy 2 yrs ago after she ate one. Immediately her throat started hurting and a lot of other symptoms. Thankfully I was somewhat familiar with anaphylaxis and took her to the ER. Now she is terrified. She cries when she can't eat what her friends eat...it may sound like nothing , but she's only 8. What breaks my heart is when she tells me she avoids certain friends when she finds out they eat nuts. This came at a time when we moved and she had to change school. She wants to make friends yet the fact that a lot of people eat nuts made it difficult for her.
Yes, food allergy sucks.

Reply
Margot
10/5/2015 06:32:09 pm

Food allergies do suck. You are AWESOME. Thank you for sharing your perspective. My daughter has multiple anaphylactic food allergies, too. I wonder (and worry) sometimes about whether she will be able to go away to college. How she would manage. I am so sorry for your suffering. Sharing your story shows me that it's possible to manage. Thank you for giving me hope. I pray this is your last episode for a long time--or ever. Keep that auvi-q handy and know that the people who love you won't think of you as a burden.

Reply
Kristen
10/5/2015 06:33:08 pm

Thank you for sharing your story with us. You are so strong and brave! My son also has food allergies and we pray daily for a cure for all affected by this very difficult way of life. Hugs and prayers sent to you.

Reply
Riann
10/5/2015 06:34:13 pm

Thank you for this because...food allergies do suck! Today food allergies suck because my almost 4 year old has just started realizing it's no fun to bring her own food to restaurants.

Reply
Kim
10/5/2015 06:39:57 pm

I stumbled upon your blog after seeing multiple shares of this post on Facebook and I am SO GLAD that I took the time to read this. I am a 34 year old mom of two, one who is 4 and Ana to egg. This most brought tears to my eyes. I admire your bravery more than I could ever express. It takes courage to write something so heartfelt and unapologetic. Bravo to you! I have been "looking on the bright side" for 4 years with my allergic son and reading this was so refreshing because everything that sucks for you, sucks for me too. And it's nice to know that someone else understands.

Reply
Celeste link
10/5/2015 06:40:11 pm

I can't imagine going through what you have in just this year. Food allergies DO SUCK! I am a mother of a 2-year-old with multiple allergies. She's allergic to soy, milk, tree nuts, peanuts, and most recently cats and dogs. We don't know exactly how bad her allergies are, but enough that the allergist prescribed her an EpiPen. I really hope she never has to be rushed to the ER. This is why her allergies suck:

We can't go out to eat at restaurants.
There are only two safe houses among our family and friends that we can visit.
I don't trust anyone else to cook for her.
People think I'm keeping her too sheltered because I'm trying to keep her alive.
Cooking everything from scratch takes up any free time that I have.
Considering homeschool because I have to worry about school staff not being knowledgeable or caring.
Worried about her getting bullied.
Worried that she will hate herself when she gets old enough to understand all of this.
Worried that I will not teach her well enough to take care of herself.
It has turned me into an overprotective paranoid parent.
It causes me to get into arguments with others, even family.
We can't have most pets.
She will not have a normal childhood.

Even with this list of absolute sucks, I will always love her, just as your family loves you. I wouldn't trade her for anyone.

As a mother, all my love to you, my dear. Please keep safe.

Reply
Theresa
10/5/2015 07:27:15 pm

Yup, you hit the nail on the head. My son is 5, just started Kindergarten and it's prob the worst year of my life. Nobody gets it and they act like they don't care. He's contact allergic to dairy. He is ANA to dairy/egg /SF/ tree nuts. Hive had lengthy discussions w school staff and they still don't do what they are supposed to. Family continues to think I'm crazy bc I just try to keep him safe. My mom even starts fights with me about holidays bc we can't go to her house bc she has a dog!!! Ugh-- food allergies suck!!! BUT we that deal are clearly blessed with superhuman powers. Lol

Reply
Celeste link
10/6/2015 07:15:19 pm

Your son's school sounds so stressful. I'm sorry you have to deal with all those people in your life. I'm so worried to find out one day if our daughter is contact allergic to something. She's been vegan since birth so the fact that she happens to be allergic to milk doesn't seem to sit with people. They think we just choose not to give her dairy, not that she can't have it so people are kind of careless with that. She accidentally ate some cream cheese at my in-laws and I freaked. Not my finest moment. Hopefully your family will understand one day. My love goes to you too, fellow supermom. Stay strong for your little man.

Andrea
10/7/2015 05:57:46 am

Oh Celeste/Lily/Theresa, you struck a cord too as a parent- I have to fight with everyone (when I am normally honestly very easygoing) just to get it in their head how bad it is...No one believes me till they see him swell up like a pig:( And, he is 7 and JUST realized he will stop breathing (and "wouldn't I DIE if I stop breathing"??)...His anxiety has gone through the roof and it is so hard to see him so upset when kids tease him and chase him with PB (Yes, his friend thought it was funny!!)...Not his friend anymore:( But, with all of his allergies- he is the MOST empathetic and sensitive child out there! When anyone is hurt or down, he is so sweet to them- it truly warms my heart...We pray everyday that they find a cure and he will someday get to live a normal life that DOESN'T suck with all of you!! XOXOXO

Theresa
10/5/2015 06:41:45 pm

I love this. My son who is 11 has had it most of his life, every once in a while when it's really getting sucky, I say well today's the day it's allergy suck day! We talk all day how much it stinks!

Reply
Breffney
10/5/2015 06:42:26 pm

It is so important to acknowledge those feelings and stop putting on a brave face. You are not alone and we all agree, allergies suck. For my family they also suck because they strain relationships with family who doesn't get it.
Thanks for all that you do for the allergy community.

Reply
Ginger
10/5/2015 06:49:09 pm

Wow, I was screaming today. I also try to be strong and have the same thought process as you have explained. Today was a field trip to the fair with my 6 year old son and my 7 year old daughter had a substitute teacher. They both are ANA to all nuts, diary, egg, sunflower seeds. Just needed to let out a burst of frustration about 1:45, just before school was out and children where home. Oh my goodness, is sometimes all I can say in a calm manner around them. You are awesome, I wish we knew you personally and my children could have you as a role model.
Thank you for this post.

Reply
Angie
10/5/2015 06:52:49 pm

Stay strong. Stay brave. You are amazing. You have no idea how many people you inspire just by being you. Thank you for your honesty. ♡♡♡

Reply
Summer
10/5/2015 06:57:18 pm

Lily, I don't know you, but I feel like I do. You are my two kiddos, 8 and 10 years from now. They both have multiple severe allergies and I already worry about their college years. It's a bit premature, but hey, that kind of goes with the territory. Allergy moms struggle right beside their kids. I just want to know you really touched my heart. Your mother's yoga teacher nailed it- we do cope by saying these things and it was refreshing to read your words. Allergies suck! Amen, honey. They really do. Bless your heart and know many of us are rooting for you, not just against your allergies, but in life generally speaking. Keep being your awesome self!

Reply
Erica
10/5/2015 07:03:30 pm

Absolute truth! Well done!!!

Reply
Heidi
10/5/2015 07:04:12 pm

Lily, my heart goes out to you. We are Pittsburgh neighbors. I have four kids; two with food allergies (and a fair amount of related anxiety). If you want to come for a home-cooked meal and unwind, send me a note. We would be happy to provide a safe meal away from campus.

Reply
Krissy / The Sugar Pixie link
10/5/2015 07:05:24 pm

Pitt alum here (and living here as well with a child with food allergies). I love this post because this is everything I think about when my child grows up. They suck so much, because I just want my child to have a question free life. "Why can't you eat this cupcake, come to this party, why is your skin like that..." Gah! People roll eyes when we want to see a label, and roll eyes when we don't eat their food.

Stay strong!!

Reply
Analia
10/5/2015 07:06:46 pm

thank you so much for writing this piece...as the mom of two very allergic children ( 9 and 7 years old) I can relate to so many of the things you say but just gave me such an enriching insight on what and how they may feel...You are a strong and beautiful women..just by recognizing and admitting that food allergies suck, you will find more strength and determination to live your life to the fullest!!! God Bless you!!

Reply
Alexa
10/5/2015 07:13:59 pm

Yes, they SUCK!!! They suck, because since day one of my daughter was born it has been hard! They suck because I dream, one of my biggest dream is to eat milk ice cream and fair food with my daughter. It suck, because I never wanted to be that "helicopter parent", but it is almost impossible not to be one because of hee multiple severe food allergies...
Wishing you a quick recovery!

Reply
Theresa
10/5/2015 07:14:23 pm

You're right- food allergies DO suck!!! They suck big time. My son is 5 and he has multiple food allergies. He is even contact allergic to dairy. I clearly understand the reasons you hate food allergies....I feel your pain everyday. It makes a normal life challenging in every single way. I'm sorry you have to deal with it, but in the end it really will make you a stronger person. I feel like everything is a battle for my child and I'm sure you feel the same. People don't understand sometimes, nor do they respect it. It's truly a gift when you find people you can surround yourself with that actual get it. I try to stick with those select few that make me feel better vs worse. It's hard, but it's life and we all know life isn't easy. Keep being strong girlfriend...you will make it to the next generation when they find a cure. Xo

Reply
DP
10/5/2015 07:14:25 pm

Lily, Thank you! Honesty is essential for our own mental health and for others to be accurately informed. I am a mom of a little boy with food allergies, and while I've never met you, I find you inspiring. Even though this blog was the honest "nasty" truth about food allergies, it gave me lots of hope that my little guy will survive and thrive, like you, despite the adversity he faces. Wishing you all the best!

Reply
Tammy
10/5/2015 07:19:36 pm

Lily, I hope you feel better soon. Even superheroes need some downtime.

Reply
Jamie
10/5/2015 07:24:30 pm

I am the mother of a seven year old girl who has multiple life threatening food allergies and asthma. Most foods she can't eat, she can't go to friends houses for sleepovers, or the movies without fear.... On and on. You understand her future, you are a role model to her. I shared this post with her and she was so happy to see that someone else thinks allergies stink big time. Most of the time we see the positive but being real with ourselves is equally important! Great post! Thank you for sharing.

Reply
Rmf
10/5/2015 07:28:57 pm

Food allergies SUCK! I am a FA mom; my son with multiple food allergies will be 13 soon. I admire your honesty, bravery, and truth. Thank you for paving the way for my son and others with FA.

Reply
Katie
10/5/2015 07:32:08 pm

I am a food allergy mommy, Lily. You go right ahead and let it all out. You've earned the right. It sucks. Big time. I'll be thinking of you.

Reply
Smita
10/5/2015 07:32:58 pm

Lily, I am mother of 2 kids with severe multiple food allergies. My older one is a senior in high school. I hear you. It is so difficult to find silver line. It was a lot easier to manage when they were young. It is so challenging now that they are on their way to be independent. I take a day at a time. Not easy to be strong and positive.

Reply
Jana
10/5/2015 07:46:25 pm

I'm very sorry. I totally, sadly agree - food allergies suck. My food allergic son is 27 and would agree with you that food allergies suck for you guys and all your loved ones. I fully and totally support and encourage grieving/self-pity/worrying/complaining after being slapped in the face with a reaction. I do know that you'll pick yourself up after you grieve/self-pity/worry/complain and be able to get back to living your life. Hugs!

Reply
Madiha
10/5/2015 07:55:40 pm

Lily, I don't know you but all I want to say is that tonight, at this moment I am thinking of you and praying for you. Thank you for being so honest!

Reply
Mom of Food Allergy Son
10/5/2015 07:56:09 pm

Hang in there! I know it sucks today -- tomorrow will be a better day!

Reply
Stephanie
10/5/2015 07:58:43 pm

You're right! Allergies do suck!!! Be mad, get angry, get it all out!!!! It's unfair. My 7 year old has multiple anaphylactic food allergies and I am always a nervous wreck! He eats nothing if I don't make it for him (save for 2 restaurants we are comfortable with), we spend sooooo much on groceries and I feel bad for him, like he is always being deprived. That sad he is a happy happy kid and while I don't believe that he has these allergies because he could handle them, like God gave them to him, I do feel that his personality is in part what makes him able to accept his alleriges. You must have an incredibly positive, tough personality too. Hang in there. Look up Dr Li, in NYC, she has FDA trial studies going on with her herbal compounds that are REDUCING and/or ELIMINATING life threatening allergies in rats and she is using these thoroughly tested herbs on people now, with some success. Maybe worth a shout. [email protected]

Reply
Amy
10/5/2015 08:08:08 pm

Food allergies do suck! They are feared, hated, sworn at, cried over, foot stomping nightmares! With that said... Food allergies make me hug my daughter tighter, protect her with a lioness like quality, champion her ability to stand up for herself, cry over her fears and make me read countless blogs, magazines, and anything I can get my hands on to help her. We are never alone in this, and on this particularly lonely feeling day? I thank you. Thank you for a wonderful reminder that we are not alone.

Reply
Ali
10/5/2015 08:09:19 pm

I agree with you 100%.... Food allergies DO SUCK indeed! Wishing you an uneventful (reaction wise) and reaction free freshman, sophmore, junior and senior year. Hugs!

Reply
Barbara
10/5/2015 08:12:19 pm

Food allergies suck. You, on the other hand, are amazing. Don't forget that. Hugs.

Reply
Michael Sporer link
10/5/2015 08:16:18 pm

#19 - Wrong, you are not in debt to anyone. You pay your debt every time you advocate for yourself and every other LTFA sufferer who doesn't have the time or voice to speak up. Take care.

Reply
Amy Bennett
10/5/2015 08:16:28 pm

Food allergies do suck. Sorry to hear the year's been so rough for you. I am in the Pittsburgh area; if I can help in any way let me know.

Reply
Elaine Kordsmeier
10/5/2015 08:25:17 pm

You are so right. That list is so perfect. Sucks that you have to go through that. Sucks that my kids go through that. Thank you for your openness and honesty.

Reply
Stacy
10/5/2015 08:30:55 pm

I do not know you nor do I have allergies but my 2 daughters do. Thank you for this! Thank you for telling me how my 6 year old feels in some sense and will feel as she grows older as will her little sister. Food allergies suck! I had a pity party for my girls today and they didn't even know it. Sending you a huge hug!

Reply
Heather C.
10/5/2015 08:38:26 pm

Yes. Sucks. All allergies. I wonder everyday that my little boy goes to kindergarten if today will be "the day." The day that an ep- pen was needed, the day that ends in 2 days in the hospital, or worse. I can never, truly, relax. For the rest of my life. And after that, who will look after him? I'll be stressed from the grave.

Reply
Denise
10/5/2015 10:48:56 pm

I am a mommy to a little boy who was born with multiple food allergies & asthma. I agree with you. ...food allergies SUCK! Thank you for summing up all the things I feel for him and me being his mom. I would add that so many people truly don't understand food allergies which makes it even worse. You are brave to write this and I will be showing my little boy this. I think he gets frustrated being allergic to the world he lives in. I feel like this might help him to feel like it's OK to feel these things. So thank you for that. Things aren't always great and it's OK to feel that way. I will be praying for you. Know that you could be helping others feel like they're not alone.

Reply
Kim
10/5/2015 11:31:40 pm

I can't know what it's personally like to suffer anaphylaxis, but my daughter does. I just want to tell you that I am in awe of the bravery that you and she exhibit every single day. Please never feel that you are a burden to your parents. Although we wish we could take it away for your sake, it's our honor to love you. Keeping you in my prayers Lily.

Reply
Tina
10/6/2015 01:23:37 am

Yes, food allergies suck! I developed food allergies in my 30's, and my youngest daughter developed hers at 15 years of age. Three out of five of my grandchildren have food allergies. I spend quite a bit of my time reading ingredients, and as you know, some companies are not as diligent as they should be to list everything that could be in the food packaged within. I keep a "stock" of Benedryl, in my purse, home , and vehicle. I know the terrifying and awkward feeling when someone goes to shake your hand, and the first thing you think of, "did they use anything on their hands like soaps or lotions that I may have a reaction to?" I have dealt with the response from some uncaring or just very uneducated individuals who have stated to me, "just do not eat it." You are a very brave young lady, and you are not alone in this struggle. Because of individuals such as yourself, there will be more understanding of the seriousness of food allergies, and changes made to make it safer for individuals with food allergies.

Reply
anita
10/6/2015 02:27:37 am

I really appreciate your post. It is hard to know what kids encounter as they go to college. I think I understand better now.

Reply
Tanya
10/6/2015 03:16:42 am

Yes! Food allergies also cause you to assess whether you can trust someone more. Sometimes this is good. You get out of unhealthy relationships sooner. Sometimes you'd rather ignore when someone is not trustworthy because they're fun and can't ignore this. This is why we need a cure!

Reply
Fiona
10/6/2015 05:57:17 am

Great post and so true. Growing up and becoming independent is hard enough, without all the stress of food allergies. You have the right to take a moment and mourn what has been lost or limited. You have the right to acknowledge the frustrations and be annoyed with the inconveniences. You have the right to be sad about the risks. It is healthy and will make you stronger as you know that you have been trained to deal with more than the average person. You are capable of succeeding at school and at life while navigating the complexity and fear that comes with severe allergies and anaphylaxis. You are an amazing survivor and will keep thriving!

Reply
Jennifer
10/6/2015 06:46:51 am

This is a great post, but now that it has been shared so widely please PLEASE remove the identifying information in the photo!!

Reply
Dawn
10/6/2015 06:53:38 am

They suck b/c we don't know why we have them and there is no cure!

Reply
Food Allergy Mom
10/6/2015 07:34:45 am

Watching your kids being constantly excluded at parties and family gatherings sucks.

Feeling sorry for yourself for all the extra work you have, and then remembering that for you all this work is temporary but for them it will be their whole lives, because eventually they will have to take care of themselves, sucks.

Reply
Kelly link
10/6/2015 09:23:47 am

I admire your bravery and like every parent reading this, including yours, wish I could be the one to bear the burden of my own child's food allergies. I commend you on identifying this creative way to cope with the anger, fear and frustration. And I hope you can feel the love that the food allergy community is sending you from every corner of this planet.

Reply
Debbie Bruce link
10/6/2015 10:09:21 am

Hi Lily...I am so glad you vented...It is important to have someplace to vent. I admire your courage. I feel those with life threatening allergies are everyday heroes. I have two adult sons - 34 and 23 years old - both with anaphylaxis. Both have traveled extensively - as a family - and on their own. My older son has worked in Australia, London & New York. My younger son recently had an anaphylactic reaction when a restaurant he frequented put peanut butter in their meatballs. I hate that before I have a glass of wine on a Saturday night - I think about where they are and if they will need me in an emergency. They are always on my mind and I admire them so much for not ever letting their allergies hold them back - for not letting insensitive comments get them down and for being lovely, empathetic young people - just like you...My everyday heroes!
This was just posted on Facebook today and I found it very helpful: "The stresses and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them a bit longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed – incapable of doing anything."

Remember to put the glass down.

Take good care of yourself!!!

Reply
Shawna
10/6/2015 12:48:13 pm

My oldest son is ANA to peanuts and tree nuts. His first exposure to peanut butter at 13 months sent us to the hospital for anaphylaxis. He soon developed asthma. For ten years we kept him safe and his asthma under control. At the beginning of August we were visiting a loved one who had baked cookies she said were safe for him (we asked all the right questions). Apparently we need to ask one more question, has the food been stored in a container that has previously housed a peanut containing item. I had to epi-pen him for the first time, which was incredibly scary for both of us. At the hospital after two hours he started to have a biphasic response and had to have more epi. It was terrifying and horrible and my son asked me if he was going to die. That is the worst. I hate that we have to fear him dying from something that should help sustain life. I hate that he had to carry epi with him and sit at a special table at lunch. I hate the fear and anxiety. I hate that every time we leave the house we have to worry about someone else being less than careful with what they eat. I hate the rude, harsh and judge mental comments we receive from other people who do not know this fear. But mostly, I am full of love for my son who IS brave, and smart and kind, and full of empathy and makes all of what we have to go through worth it, because he exists.

Reply
Holly
10/6/2015 03:56:01 pm

Hi Lily - they do so terribly suck! I am sorry that you are going through this but hang in there. You've got more vibrance, verve, personality, intelligence, charm and perspective than most people - and that makes you super interesting and so much fun to be around - regardless of the awful food allergies. Rock on!!! Life beckons you to do wonderful things!!!

Reply
AdriNa
10/6/2015 05:24:14 pm

Amen sister!! I heartily agree. There is absolutely nothing redeeming about food allergies and as a mother of one with a severe allergy I completely agree. This stinks. She hates it, we hate it, and it can get to be a grind being vigilant about food.

We do our best to educate those around us, we try to offer reason and information in the face of seemingly selfish indifference or ignorance, and we spend countless hours making sure that her food is, in fact, safe. It's absurd, it can be exhausting, and always seems wholly unfair. I admire you for speaking up and telling it like it is. Food allergies just plain SUCK.

Hang in there. I have faith that treatments are possible, new discoveries are happening with greater frequency, and I believe that there will come a day when you won't have to fear anaphalxsis. I really do.

Reply
Monica
10/6/2015 05:58:38 pm

They do SUCK, for every reason you listed and then some! My 11 yr old daughter is ANA to peanuts and I hate it for her. It seems like the stupidest thing on the earth that a single bite of something can kill. Hugs to you, Lily! Hopefully we're all really close to a cure.

Reply
Mom of allergic teens
10/6/2015 06:33:14 pm

They do suck, and as a mom of two teens with food allergies (and episodes of anaphylaxis), I have worried a lot.

I remind myself - and this may help or may not - that it is actually weird that humans can eat SO many different things. Do you know certain animals can eat only 1-2 things? We are lucky really, we have so many choices. The part that stinks is that making those choices is harder than for "regular" people (without FA), and that if we make the wrong one, there is risk of a reaction.

Hang in there! Be careful, be safe, and enjoy life and all the things you can eat! <3

Reply
Monika
10/12/2015 12:32:15 am

Hello Lily
my daughter is 11 now, more and more struggling with the same issues as you do. Your words help me a lot to see and understand it much better from her point of view. Thank you for sharing your thoughts.

Reply
Sarah link
5/18/2016 10:52:16 am

I love this and agree! I can never identify with the "positive aspects of food allergies" posts and discussions. They don't ring true to me at all! Thanks for sharing!

Reply
CJ
1/20/2022 01:17:56 pm

I have a latex reactive food allergy. I am allergic to a list of foods as long as my arm. I try to make the best of it most days. I am tired of cooking for 45 to 95 minutes every time I want something to eat. If I eat the wrong thing (allergy food) or have too many carbs I either can't breathe, develop arthritis or migraines or any combination of these things. Sometimes my body comes up with a new way to punish me. All I want is a sandwich. Something easy. Bread that comes from the store that doesn't make my joints feel like they are filled with broken glass. Tapioca does it every time and this was my latest allergy discovery. Sometimes I suffer through the mucus filled coughing and the pain and not being able to bend my knees just to eat like a normal person. I am allergic to latex too you know. It is not just a food reaction. News to me but latex is something that is put in shoes,clothes and mattresses. I am constantly on allergy meds. I developed this like 5 years ago. I used to be able to eat pizza and banana bread and chocolate and sandwiches without consequences. Not anymore. No more winters without allergy meds. I try to stay positive. I cannot even go to Target anymore because they stocked something latex. Even if they sold it all the molecules from latex are impossible to get rid of. I tried doctors. They said I have some mystery thing no one has ever seen before. I was diagnosed by a nutritionist. He helped me. I was not even issued an EpiPen because no one will prescribe one. Maybe they just don't care enough to waste the ink in the pen they borrowed from the secretary a week ago. Whatever the excuse I still don't have. If I feel iffy I will take my nebulizer with me and just do a treatment right in public.

Reply



Leave a Reply.

    Author

    Lily Roth Is a college student with food allergies and Nancy Popkin is her mother.

    Picture
    Picture

    Categories

    All

    Archives

    December 2016
    October 2016
    July 2016
    April 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014

Powered by Create your own unique website with customizable templates.